FND Scientific Registry
FND Hope has teamed up with the Genetic Alliance to create the world’s first scientific registry for functional neurological disorders (FND). The purpose of the Scientific Registry is to create a platform for patients with FND to engage and contribute to medical research about the condition and its clinic care, causes, diagnosis, and treatment. Patient participation is vital to research. By engaging patients, disease advocacy organisations, providers and researchers with this platform, it is expected that clinical research will be accelerated, increase the understanding of the condition and supporting the development of more effective treatments. By aggregating patients and their health information in a centralised platform, researchers will be able to find more suitable study participants, enhancing the confidence and validity of their findings.